Real World Value: Advancing Payer Understanding of RWE in Rare Disease
Drug developers and regulators are expanding the use of real world evidence to design, test and review rare disease treatments. But market access challenges persist [...]
Life in the Lab | Women in Science—September 2019
Contributions to keep celebrating Whether they were the first to break down barriers or win a Nobel Prize, women have been essential to the advancement [...]
RARE Science Donated 200 RARE Bears to Local Kids with Physical Deformities
RARE Science, an all-volunteer San Diego nonprofit dedicated to accelerating diagnosis and therapeutic development for kids with rare disease, gifted 200 RARE Bears to local [...]
RARE Science on UT Radio
Christina Waters, CEO and Founder of RARE Science, Inc., talks about her organization’s mission to help the millions of kids around the world that have [...]
Dr. Christina Waters on how DNA is the common language for #EveryRare Disease
Dr. Christina Waters outlines her vision for sharing global genomic data to better diagnose and treat rare diseases. Rare disease touches families all over the [...]
Rare Disease World Sees New Pioneer
Her name is Christina Waters, and she is the founder and CEO of Rare Science, a California non-profit whose mission objective is to aid children [...]
Founder of nonprofit lands at WuXi NextCODE for rare disease push
Christina Waters, Ph.D., is the founder and CEO of Rare Science, a California-based nonprofit that helps children with rare diseases and their families find diagnoses [...]
BEAR-NINA SEW-INS
This year we introduced you to Christina “Chris” Waters, the president, CEO and Founder of RARE Science. Chris is a delight to work with. She’s [...]
BERNINA of America Partners With RARE Science to Host RARE BEAR-NINA Events
Attendees will have the opportunity to make a RARE Bear that will be donated to children with rare diseases. Read More Here ..
Pushback on Rare Drug Prices: Not So Rare After All
There’s no doubt the “pricing crisis,” has taken a heavy toll on the reputation of the biopharmaceutical industry. The very industry that strives to improve [...]